I wrote the following post yesterday but apparently never posted it. I haven’t heard from Travis yet this morning after his appt with the ortho doctor; he went to lunch with a friend right after his visit. Ryan had a very rough morning and I literally didn’t get a thing done this morning until after 11:30 because he was having pain and wouldn’t let me get off the couch. So I sat with him and read a book which was nice but I sure didn’t feel productive. I’ve had a few friends tell me in the last few days that they haven’t heard from me in a while and it’s true. These past 2 1/2 weeks have been a blur trying to figure Ryan out, working extra hours, trying to figure out our new normal with Travis working part time in the evenings again, kids coming and going. It’s been a rough transition and I feel like so much of my time is spent working, talking on the phone to doctors and nurses, making appts or getting supplies ordered from home health and trying to spend time with the kids. Travis and I haven’t had a lot of time together but hopefully things will settle down soon. God has been so good to supply all our needs and we feel very blessed. I can’t put into words how humbled we feel!
I updated the video of Ryan and added a song and pictures from the past two years at the end. It’s long but it’s our story in pictures.
Nothing has really changed here these past few days. The kids are at the tail end of spring break and head back to school in the morning. I’m sure it will be hard for them to wake up and get moving. It’s been a good week, and we couldn’t have dreamed of more beautiful weather. Ryan continues to retch but otherwise is doing OK. He seems accustomed to the feeding pump and carrying it around everywhere. He still isn’t handling a lot of stimulation and does best when he’s out for only an hour or so, still needing a lot of rest and sleep. It’s going to be a busy week. Travis follows up with the ortho doctor; he is healing but still limps a bit. Then we have an appointment with the neurosurgeon on Tuesday, then the GI doctor on Wednesday and Ryan sees a new dentist too. He is starting back to therapy at Madonna but we have no idea when he’ll get back to school. We honestly haven’t thought that far at this point and he isn’t ready anyway.
I’m off to work a few extra hours so this will be brief. Enjoy the gorgeous weather!
2 thoughts on “new video”
What a precious video–thank you for sharing it with all of us reading your posts. I believe right now, sitting with your son counts as a very productive day.
Your family is in my prayers every day.
Wow~what a very special child and family…God bless you all!!! xoxobetsy