settled

Ryan is doing as good as can be expected. He is settled in his bed in the PICU and is stable. Although very out of it, he is awake at times and knows we are here with him. The doctor said the corpus callosum is supposed to be paper thin and cut easily with a knife. Ryan’s, however, was thick and rubbery and the doctor has to use scissors to cut through it because it was so damaged from seizures. When he had his lobectomy 14 months ago, he said the same thing about his right frontal lobe. Obviously there has been a lot of damage throughout his little brain, and while this surgery won’t get rid of his seizures, hopefully it will do what we are hoping for and reduce the severity and number he experiences. What a little trooper we have! This has been a very emotional day for us and it’s so hard to watch our baby go through this. At times I feel guilty for putting him through all of it, but long term we know it was the right decision. Like we’ve both said a hundred times, it’s all about quality of life at this point. Please pray he sleeps tonight and is comfortable. Tomorrow when I am rested I’ll work on getting some pictures loaded. Thank you for all the sweet messages throughout the day; they mean more than anyone realizes.

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6 thoughts on “settled

  1. May rest and God’s Peace just descend upon each one of you tonight.
    Ps. 62:1-2
    “Myy soul finds rest in God alone;
    my salvation comes from him.
    He alone is my rock and my salvation;
    he is my fortress, I will never be shaken.”
    Lorri

  2. May you each have peaceful rest and hopefully sleep tonight!! God is with you!! Deut. 31:6 ” I will never leave you nor forsake you.” Good Night, Sweet Dreams and I look forward to great updates on Tuesday!

  3. Sure been praying for Ryan and called Betsy & we prayed and 3 others I prayed with this morning. Keeping you all in prayers and that your faith will just get stronger. Thanks for the updates.
    Delores

  4. Kim and Travis, everyone at KVC is keeping up-to-date thanks to your posts and your whole family is in our prayers. We’d like to do something for Ryan. What is his favorite food? Dessert? Restaurant? Toy? Please let us know if there is anything you need.

  5. Dear Kim and Travis,
    Sorry, I have never commented before. I read everything you send out and I am praying for you all. You are an encouragement to me and how you cling to the Lord and walk by faith. Thanks for sharing your lives. Jody Bogner

  6. I’m relieved to hear he is doing as well as expected. I hope you and Travis are taking care of yourselves, especially sleep wise. I miss the little guy and hope to be able to visit him soon. Prayers to all of you.
    Sharon

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