Good morning! Our little guy decided 4:30 would be a great time to start the day although I wasn’t overly excited when I saw the time. Ryan is getting his PICC placed at 8:30 this morning then we will start the TPN. We will try to give him some more Pedialyte through his feeding tube today, and if he is able to absorb it we will keep doing the fluid challenge. If he doesnt digest it, the doctors will think about doing a scope. He is doing well otherwise and doesn’t appear to be in pain. When they place the PICC they will also draw the IGG and IGE labs that will be back later this week and hopefully tell us why his skin is hyper sensitive.
Travis is home with the older kids who are holding up under all this stress. They each are having moments when their emotions all come undone but overall they seem to be OK. It helps that they have had a lot of time with grandparents lately. Travis is full weight bearing now and is in a walking boot. His foot is still very swollen now almost three weeks out from surgery and he is still having some pain but he’s getting along OK. We will all be so happy when we can be home as a full family again. I’m ready for the normal mundane even if it’s going to now include Ryan being hooked up to an IV. It will just be a new normal and eventually we’ll get used to it.
I just have to keep telling myself God knows what we need before we even know we need it. He is faithful to provide and I am thankful I don’t have to worry about the next step in this journey. It’s still hard emotionally but knowing there is a bigger picture, a greater purpose I simply can’t see brings a huge sense of relief. Travis and I could never walk this life together and maintain our deep love and commitment for each other without our faith.
Isaiah 41:10 ~ Fear not, for I am with you. I am your God. I will strengthen you. I will help you. I will uphold you with my righteous right hand.